Blood & Marrow Transplant Information Network (BMT InfoNet) is not-for-profit 501(c)3 organization dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.
PV Reporter
PV Reporter was created as a hub to provide “easy access” to pertinent information on Polycythemia Vera (PV), Essential Thrombocythemia (ET) and Myelofibrosis (MF). It is an MPN research tool featuring comprehensive, timely information, helping patients make better treatment decisions affecting their care, while providing a positive impact on their lives. Support services are provided to patients via email, phone and social media channels.
MDS Foundation Inc.
The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS.
The Patient Access Network (PAN) Foundation
The Patient Access Network (PAN) Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications. PAN provides the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Since its founding in 2004, PAN has provided nearly 1 million underinsured patients with over $2.6 billion in financial assistance, through nearly 60 disease-specific programs. We work with the PAN Foundation.
Friends of ET
Friends of ET is committed to raising funds to support research for Essential Thrombocythemia (ET) and the other Myeloproliferative Neoplasms (MPNs.) These are rare bone marrow/blood cancers with no known cure and few treatments. Because they are so rare, scientists have paid them little attention. We are trying to change that by funding and issuing research grants.
The Leukaemia Foundation-Australia
The Leukaemia Foundation is Australia’s only national charity dedicated to helping those with leukaemia, lymphoma, myeloma, MPN and related blood disorders survive and then live a better quality of life.