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    MPN Patient Resources

    Feature Article:
    A Myeloproliferative Neoplasm (MPN) Diagnosis: Taking an Active Role
    By Julia Olff, MBA, CHES

    Getting an MPN diagnosis can be a shock but there are steps you can take to get the support and care you need. MPNs are a group of rare blood cancers. The three main MPNs are Myelofibrosis (MF), polycythemia vera (PV), and essential thrombocytemia (ET). If you are facing an MPN diagnosis you may feel confused, scared, and not know what to do next. You may feel uncertain about your future and what having an MPN may mean for you.

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    Guest Speakers

    Dr. Holly Geyer, MD, Mayo Clinic, Scottsdale

    Dr. Saghi Ghaffari, PhD, Mount Sinai Hospital, NY

    Dr. Jamile Shammo, MD, Rush University Medical Center, Chicago

    Dr. Raajit Rampal, MD, PhD, Memorial Sloan Kettering, NYC

    Dr. Gail Roboz, MD, Weill Cornell, NYC

    Dr. David Leibowitz, MD, Palo Alto Medical Foundation, Palo Alto

    Dr. Toyosi Odenike, MD, University of Chicago, Chicago

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    The Journey From Diagnosis To Treatment And A Healthier Lifestyle

    With: Ann Brazeau, CEO- MPN Advocacy and Education International
    And Dr. Ruben Mesa, MD- Mayo Clinic

    Click on slide to watch full interview.

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    View the Washington, DC Patient Education Symposium held March 19, 2015

    Speakers:
    •Dr. Ruben Mesa, MD- Mayo Clinic Scottsdale, AZ
    •Dr. Laura Michaelis, MD- Medical College of Wisconsin
    •Dr. Raajit Rampalr, MD, PhD- Memorial Sloan Kettering, NY
    -Dr. John Crispino, PhD- Northwestern Memorial, Chicago, IL
    •Amy Niles, Patient Advocacy- Patient Access Network (PAN)

    Thank you to all who attended. Click on slide for videos and information.

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    Vietnam Veterans and MPNs

    Do You Have Myelofibrosis (MF), Polycythemia Vera (PV) or Essential Thrombocythemia (ET)?

    Were you exposed to Agent Orange?

    If so please contact us at:
    517.899.6889 or email Ann Brazeau at abrazeau@mpnadvocacy.com

    For additional information and to read Vietnam Veteran Barry's story click on the title above.

Clinical Trials

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We keep you informed of MPN-related Clinical Trial Updates and News:

 

 

 

Patient & Caregiver Support

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Join with other patients to learn more about your disease and treatment options through an in-person or online support group. Many major cities throughout the United States and internationally host regular meetings. Contact Ann Brazeau if you are interested in establishing a new Support Group for your area : 517.899.6889  abrazeau@mpnadvocacy.com
Learn More

Science Advisor: Ruben Mesa

Ruben MesaOur scientific advisor is Dr. Ruben Mesa of the Mayo Clinic.

 

Dr. Mesa was one of the featured speakers at the Washington D.C. Patient Education Symposium held in March 2015.

Read his latest update: MPN Highlights from the American Society of Hematology

 

Free Patient Info Pack

Give us your address and we’ll send you a free informational package in the mail. Your contact information will be kept strictly confidential. Sign Up Now

FAQs

What is a myeloproliferative neoplasm? MPNs are a group of rare blood cancers that overproduce blood cells in the bone marrow, and are caused by genetic mutations in the blood stem cells:

  • Myelofibrosis is a rare bone marrow cancer. Bone marrow cells that produce blood cells develop and function abnormally resulting in fibrous scar tissue formation.
  • Polycythemia Vera is a disorder in which the bone marrow makes too many red blood cells. It may also result in the production of too many other types of blood cells – white blood cells and platelets.
  • Essential Thrombocythemia causes the body to produce too many blood platelets-thrombocytes. It can cause abnormal clotting or bleeding. The bone marrow makes too many platelet-forming cells or megakaryocytes, which release platelets into your blood.

Learn More