Pictured at left is Dr. Ruben Mesa, Mayo Clinic, one of the featured speakers at the San Mateo Patient Education Symposium held on May 22. Click here for Webcasts of all speakers at this event. Slides from the featured speakers of the April 3 Symposium in the Tampa Bay Area are now available. Click on this link. Washington D.C. Symposium was a great success. You can watch video of all of the featured speakers. Additional Patient Education Events for 2014: The next Patient Education Symposium will be in Cleveland, OH, October 9, 2014. MPN 2014 Events sponsored by the National Organization for Rage Diseases (NORD) (Click for Brochure) NORD event August, 16-Denver
Click on the “Learn More” link below for a complete Calendar of Events for 2014, 2015, and 2016 Learn More
Get the latest news on MPN research, clinical trials, treatments, education, and advocacy.
- Ruxolitinib: Long-Term Management of Patients with MF and Future Directions in the Treatment of MPNs
- Ruxolitinib for MF: Indication of Considerable Added Benefit
- CTI BioPharma’s Pacritinib Granted FDA Fast Track Designation for Treatment of MF
- FDA Accepts Application for Ruxolitinib as Treatment for PV
- The Role of JAK2 Mutation in Thrombotic Complications of MPNs
Patient & Caregiver Support
Join with other patients to learn more about your disease and treatment options through an in-person or online support group. Many major cities throughout the United States and internationally host regular meetings. Contact Ann Brazeau if you are interested in establishing a new Support Group for your area : 517.899.6889 firstname.lastname@example.org Learn More
Science Advisor: Ruben Mesa
Our scientific advisor is Dr. Ruben Mesa of the Mayo Clinic. Read his latest update: MPN Highlights from the American Society of Hematology
Free Patient Info Pack
Give us your address and we’ll send you a free informational package in the mail. Your contact information will be kept strictly confidential. Sign Up Now
What is a myeloproliferative neoplasm? MPNs are a group of rare blood cancers that overproduce blood cells in the bone marrow, and are caused by genetic mutations in the blood stem cells:
- Myelofibrosis is a rare bone marrow cancer. Bone marrow cells that produce blood cells develop and function abnormally resulting in fibrous scar tissue formation.
- Polycythemia Vera is a disorder in which the bone marrow makes too many red blood cells. It may also result in the production of too many other types of blood cells – white blood cells and platelets.
- Essential Thrombocythemia causes the body to produce too many blood platelets-thrombocytes. It can cause abnormal clotting or bleeding. The bone marrow makes too many platelet-forming cells or megakaryocytes, which release platelets into your blood.