View presentations from our most recent event: San Diego-Women & MPN Conference.
Calendar of Events
Sign up for our Newsletter: MPN Community Connection
We are pleased to bring you our new monthly newsletter. Stay informed and updated on issues related to myelofibrosis, polycythemia vera and essential thrombocythemia via monthly email. View our most recent issue.Sign Up Now
We keep you informed of MPN-related Clinical Trial Updates and News:
Get the latest news on MPN research, clinical trials, treatments, education, and advocacy. Click here to view our newsletter.
- CTI BioPharma Drug Application for Pacritinib for MF Patients
- New Drug for Myelofibrosis on the Horizon
- Calreticulin Mutations in MPNs
- Summary of Proposed Medicare Coverage for Stem Cell Transplants
Patient & Caregiver Support
Join with other patients to learn more about your disease and treatment options through an in-person or online support group. Many major cities throughout the United States and internationally host regular meetings. Contact Ann Brazeau if you are interested in establishing a new Support Group for your area : 517.899.6889 firstname.lastname@example.orgLearn More
Our scientific advisor is Dr. Ruben Mesa of the Mayo Clinic. He is a frequent speaker at our events. Read more about Dr. Mesa.
Free Patient Info Pack
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What is a myeloproliferative neoplasm? MPNs are a group of rare blood cancers that overproduce blood cells in the bone marrow, and are caused by genetic mutations in the blood stem cells:
- Myelofibrosis is a rare bone marrow cancer. Bone marrow cells that produce blood cells develop and function abnormally resulting in fibrous scar tissue formation.
- Polycythemia Vera is a disorder in which the bone marrow makes too many red blood cells. It may also result in the production of too many other types of blood cells – white blood cells and platelets.
- Essential Thrombocythemia causes the body to produce too many blood platelets-thrombocytes. It can cause abnormal clotting or bleeding. The bone marrow makes too many platelet-forming cells or megakaryocytes, which release platelets into your blood.