• Hawaii 2015 Flyer

    Register Now!

    Do you have Myelofibrosis, Essential Thrombocythemia, or Polycythemia Vera?
    If so, please join us in Honolulu, Hawaii for an
    MPN Educational Symposium on April 23, 2015

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    The Journey From Diagnosis To Treatment And A Healthier Lifestyle

    With: Ann Brazeau, CEO- MPN Advocacy and Education International
    And Dr. Ruben Mesa, MD- Mayo Clinic

    Click on slide to watch full interview.

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    Register Now!

    The Washington D.C. Patient Education Symposium

    Thursday, March 19, 2015
    Westin City-Center, Washington DC

    Speakers:
    •Dr. Ruben Mesa, MD- Mayo Clinic Scottsdale, AZ
    •Dr. Laura Michaelis, MD- Medical College of Wisconsin
    •Dr. Raajit Rampalr, MD, PhD- Memorial Sloan Kettering, NY
    -Dr. John Crispino, PhD- Northwestern Memorial, Chicago, IL
    •Amy Niles, Patient Advocacy- Patient Access Network (PAN)

    This event is free to attend but you must pre-register. Click on slide for information.

    Click on this slide for more information.

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    Women and MPNs

    Meet the women in the trenches of MPNs. A new profile of MPNs is emerging, as younger patients are being diagnosed and new issues are being recognized by the MPN medical community who see women experiencing additional challenges who have myelofibrosis, essential thrombocythemia, and polycythemia vera.

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    Are You a Vietnam Veteran?

    Do You Have Myelofibrosis (MF), Polycythemia Vera (PV) or Essential Thrombocythemia (ET)?

    Were you exposed to Agent Orange?

    If so please contact us at:
    517.899.6889 or email Ann Brazeau at abrazeau@mpnadvocacy.com

    For additional information and to read Vietnam Veteran Barry's story click on the title above.

Educational Events

Ruben Mesa

Pictured at left is Dr. Ruben Mesa, Mayo Clinic, our Scientific Advisor.

Our next Patient Education Symposium is March 19, 2015 in Washington DC. Click here for additional information.

Dr. Mesa was one of the featured speakers at the San Mateo Patient Education Symposium held in May 2014. You can watch videos of all speakers at this event.

Calendar of Events

 

Patient & Caregiver Support

stock1Join with other patients to learn more about your disease and treatment options through an in-person or online support group. Many major cities throughout the United States and internationally host regular meetings. Contact Ann Brazeau if you are interested in establishing a new Support Group for your area : 517.899.6889  abrazeau@mpnadvocacy.com Learn More

Science Advisor: Ruben Mesa

Our scientific advisor is Dr. Ruben Mesa of the Mayo Clinic. Read his latest update: MPN Highlights from the American Society of Hematology

Free Patient Info Pack

Give us your address and we’ll send you a free informational package in the mail. Your contact information will be kept strictly confidential. Sign Up Now

FAQs

What is a myeloproliferative neoplasm? MPNs are a group of rare blood cancers that overproduce blood cells in the bone marrow, and are caused by genetic mutations in the blood stem cells:

  • Myelofibrosis is a rare bone marrow cancer. Bone marrow cells that produce blood cells develop and function abnormally resulting in fibrous scar tissue formation.
  • Polycythemia Vera is a disorder in which the bone marrow makes too many red blood cells. It may also result in the production of too many other types of blood cells – white blood cells and platelets.
  • Essential Thrombocythemia causes the body to produce too many blood platelets-thrombocytes. It can cause abnormal clotting or bleeding. The bone marrow makes too many platelet-forming cells or megakaryocytes, which release platelets into your blood.

Learn More