Pictured at left is Dr. Ruben Mesa, Mayo Clinic, one of the featured speakers at the San Mateo Patient Education Symposium held on May 22. Click here for Webcasts of all speakers at this event. Slides from the featured speakers of the April 3 Symposium in the Tampa Bay Area are now available. Click on this link. Washington D.C. Symposium was a great success. You can watch video of all of the featured speakers. Additional Patient Education Events for 2014: The next Patient Education Symposium will be in Cleveland, OH, October 9, 2014. MPN 2014 Events sponsored by the National Organization for Rare Diseases (NORD) (Click for Brochure) NORD event August, 16-Denver
Click on the “Learn More” link below for a complete Calendar of Events for 2014, 2015, and 2016 Learn More
Clinical Trial Updates and News:
Get the latest news on MPN research, clinical trials, treatments, education, and advocacy.
- Join Incyte and Others to Raise Awareness of Rare Blood Cancers Called Myeloproliferative Neoplasms MPNs and Honor MPN Heroes
- MPN Advocacy and Education International to Present at World Orphan Drug Congress
- Man with MF Sues Over Occupational Benzene Exposure
- Phenotypic Gender Differences in Polycythemia Vera
- Galena Doses First Patient to Treat MPN-Related Thrombocytosis
Patient & Caregiver Support
Join with other patients to learn more about your disease and treatment options through an in-person or online support group. Many major cities throughout the United States and internationally host regular meetings. Contact Ann Brazeau if you are interested in establishing a new Support Group for your area : 517.899.6889 email@example.com Learn More
Science Advisor: Ruben Mesa
Our scientific advisor is Dr. Ruben Mesa of the Mayo Clinic. Read his latest update: MPN Highlights from the American Society of Hematology
Free Patient Info Pack
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What is a myeloproliferative neoplasm? MPNs are a group of rare blood cancers that overproduce blood cells in the bone marrow, and are caused by genetic mutations in the blood stem cells:
- Myelofibrosis is a rare bone marrow cancer. Bone marrow cells that produce blood cells develop and function abnormally resulting in fibrous scar tissue formation.
- Polycythemia Vera is a disorder in which the bone marrow makes too many red blood cells. It may also result in the production of too many other types of blood cells – white blood cells and platelets.
- Essential Thrombocythemia causes the body to produce too many blood platelets-thrombocytes. It can cause abnormal clotting or bleeding. The bone marrow makes too many platelet-forming cells or megakaryocytes, which release platelets into your blood.