Pictured at left is Dr. Ruben Mesa, Mayo Clinic, who will be one of the featured speakers at the San Mateo Patient Education Symposium.
Slides from the featured speakers of the April 3 Symposium in the Tampa Bay Area are now available. Click on this link.
Washington D.C. Symposium was a great success. You can watch video of all of the featured speakers.
Additional Patient Education Events for 2014:
- May 22, San Mateo, CA
- September, San Diego, CA
- October, London
Click on the “Learn More” link below for a complete Calendar of Events for 2014, 2015, and 2016Learn More
Learn about clinical trials currently in progress for
myelofibrosis (MF), essential thrombocythemia (ET) and polycythemia vera (PV).
Get the latest news on MPN research, clinical trials, treatments, education, and advocacy.
- Jakafi Prolongs Survival in Primary Myelofibrosis
- Presentations at the April 3, 2014 Patient Education Symposium, Tampa Bay Area
- Proposed Revision of WHO Diagnostic Criteria for MPNs by Dr. Angela Fleischman.
- Video Discussion of a Genetic Mutation- CalR
- “MPN Updates” a New Source of MPN News for Physicians and Healthcare Teams
Patient & Caregiver Support
Join with other patients to learn more about your disease and treatment options through an in-person or online support group. Many major cities throughout the United States and internationally host regular meetings.
Tampa Bay Area Support Group will meet on Sunday, May 4,2014 at 1:00 p.m. Click here. Contact Natalie at 727.258.1115
Columbus Ohio Support Group is forming. Contact Judy at: email@example.com for additional information.
Contact Ann Brazeau if you are interested in establishing a new Support Group for your area : 517.899.6889 firstname.lastname@example.orgLearn More
Science Advisor: Ruben Mesa
Our scientific advisor is Dr. Ruben Mesa of the Mayo Clinic. Read his latest update:
Free Patient Info Pack
Give us your address and we’ll send you a free informational package in the mail. Your contact information will be kept strictly confidential.Sign Up Now
What is a myeloproliferative neoplasm?
MPNs are a group of rare blood cancers that overproduce blood cells in the bone marrow, and are caused by genetic mutations in the blood stem cells:
- Myelofibrosis is a rare bone marrow cancer. Bone marrow cells that produce blood cells develop and function abnormally resulting in fibrous scar tissue formation.
- Polycythemia Vera is a disorder in which the bone marrow makes too many red blood cells. It may also result in the production of too many other types of blood cells – white blood cells and platelets.
- Essential Thrombocythemia causes the body to produce too many blood platelets-thrombocytes. It can cause abnormal clotting or bleeding. The bone marrow makes too many platelet-forming cells or megakaryocytes, which release platelets into your blood.