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    The Journey From Diagnosis To Treatment And A Healthier Lifestyle

    With: Ann Brazeau, CEO- MPN Advocacy and Education International
    And Dr. Ruben Mesa, MD- Mayo Clinic

    Click on slide to watch full interview.

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    View the Washington, DC Patient Education Symposium held March 19, 2015

    Speakers:
    •Dr. Ruben Mesa, MD- Mayo Clinic Scottsdale, AZ
    •Dr. Laura Michaelis, MD- Medical College of Wisconsin
    •Dr. Raajit Rampalr, MD, PhD- Memorial Sloan Kettering, NY
    -Dr. John Crispino, PhD- Northwestern Memorial, Chicago, IL
    •Amy Niles, Patient Advocacy- Patient Access Network (PAN)

    Thank you to all who attended. Click on slide for videos and information.

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    Join Us in San Diego September 11th and 12th for the first Women and MPN two-day conference.

    Meet the women in the trenches of MPNs. A new profile of MPNs is emerging, as younger patients are being diagnosed and new issues are being recognized by the MPN medical community who see women experiencing additional challenges who have myelofibrosis, essential thrombocythemia, and polycythemia vera.

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    Do You Have Myelofibrosis (MF), Polycythemia Vera (PV) or Essential Thrombocythemia (ET)?

    Were you exposed to Agent Orange?

    If so please contact us at:
    517.899.6889 or email Ann Brazeau at abrazeau@mpnadvocacy.com

    For additional information and to read Vietnam Veteran Barry's story click on the title above.

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    Need Help Paying for MPN Treatment?

    More than one-third of people with chronic diseases, including MPNs, have health insurance but still cannot afford the co-payments for specialty medications needed to manage their diseases. That leaves numerous patients with treatments in sight but out of reach. Most pharmaceutical companies have “Patient Assistance Programs” to help make the cost of prescription medications affordable to the patient. Learn more about your options.

 

Patient & Caregiver Support

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Join with other patients to learn more about your disease and treatment options through an in-person or online support group. Many major cities throughout the United States and internationally host regular meetings. Contact Ann Brazeau if you are interested in establishing a new Support Group for your area : 517.899.6889  abrazeau@mpnadvocacy.com
Learn More

Science Advisor: Ruben Mesa

Ruben MesaOur scientific advisor is Dr. Ruben Mesa of the Mayo Clinic.

Dr. Mesa was one of the featured speakers at the Washington D.C. Patient Education Symposium held in March 2015.

Read his latest update: MPN Highlights from the American Society of Hematology

 

Free Patient Info Pack

Give us your address and we’ll send you a free informational package in the mail. Your contact information will be kept strictly confidential. Sign Up Now

FAQs

What is a myeloproliferative neoplasm? MPNs are a group of rare blood cancers that overproduce blood cells in the bone marrow, and are caused by genetic mutations in the blood stem cells:

  • Myelofibrosis is a rare bone marrow cancer. Bone marrow cells that produce blood cells develop and function abnormally resulting in fibrous scar tissue formation.
  • Polycythemia Vera is a disorder in which the bone marrow makes too many red blood cells. It may also result in the production of too many other types of blood cells – white blood cells and platelets.
  • Essential Thrombocythemia causes the body to produce too many blood platelets-thrombocytes. It can cause abnormal clotting or bleeding. The bone marrow makes too many platelet-forming cells or megakaryocytes, which release platelets into your blood.

Learn More