If you are seeking support and would like a safe place to meet other patients and caregivers, and learn more about your diagnosis, you may want to join a support group in your area. If one does not exist, please let us know and we can discuss either creating one, or other options. Please contact us at abrazeau@mpnadvocacy.com.
Click here for MPN Advocacy & Education International’s
Support Group Coordinator Guidebook
Look for support groups in the following places:
Arizona
Phoenix
Contact:
California
Los Angeles
Contact: Ron Anderson, ron.anderson77@gmail.com
Upcoming meetings: contact bethprobert@gmail.com–
San Diego
Contact: Suzanne Forrest, suzannemforrest@yahoo.com
Upcoming meetings:
Location:
San Francisco – Bay Area
Contact: Susan, susanklepper@hotmail.com
Coachella Valley
Contact: Linda, suttonprescott@aol.com
Colorado
Denver
Contact: Mabel, mabel.d.peters@kp.org
District of Columbia
Contact: David, 55saveslives@gmail.com
Florida
Contact:
Georgia
Atlanta
Contact: Bonnie Evans kbemje@bellsouth.net or Marina Sampanes Peed, laughatillness@gmail.com
Idaho
Boise
Contact: Mary Grant, naynaygrant@aol.com
Indiana
Bloomington
Contact: Ellen, hankandellen@bluemarble.net
Illinois
Chicago
Contact:
Kentucky
Contact: Susan, smkennedy0@gmail.com
Massachusetts and greater New England
Michigan
Lansing
Contact: Ann Brazeau, abrazeau@mpnadvocacy.com or 517-899-6889
Nevada
Contact Cristina, corozco11@cox.net
New Jersey
Contact: Cheryl Bonder, info@marigoldhealthandwellness.com
New Mexico
Albuquerque
Contact: Arlene, abq_mpn@yahoo.com
New York
New York City
Contact: Jen Bealer at jen.bealer@gmail.com
North Carolina
Contact: Janice, jcreed@roadrunner.com
Ohio
Akron – Cleveland
Contact: Jay Schmitt, ohiompd@sbcglobal.net
Columbus
Contact: Judy, judyMPN@yahoo.com
Cincinnati, SW Ohio, NE Kentucky, & SE Indiana
Contact: Rebecca Lubitz at rebeccalub@aol.com or 513-793-3179
Oregon
Eugene
Contact: Antje Hjerpe, jahjerpe@sbcglobal.net
Pennsylvania
Philadelphia
Contact: Marie at mtomp57083@comcast.net
Pittsburgh
Contact: Jean Diesch, mpn.pgh.sup@gmail.com or 724.831.0368
Puerto Rico
San Juan
Contact: Maribel & Michael Rey, P.O. Box 364885, San Juan, PR 00936
South Carolina
Contact: Janice, jcreed@roadrunner.com
Charleston
Contact: Leslie, lesliedispensaperlman@yahoo.com
Texas
Dallas – Fort Worth
Contact: James Livermore, jlmore2@gmail.com
Houston
Contact: Charlie Nielsen at charlienielsen@aol.com
Utah
Salt Lake City
Contact: Rynda at ryndabrown2006@yahoo.com
Washington
Seattle
Contact: Seattle MPD Yahoo Group
Wisconsin
Racine (Includes SE Wisconsin and NE Illinois)
Contact: Karen Luba at klipluba@yahoo.com or 262.552.7047
Australia
Contact: Ken Young info@mpd-oz.org or go here to be added to the mailing list for MPD Australia.
Canada
Canadian MPN Network
Chair: Cheryl Petruck
Contact: canadianmpnnetwork@gmail.com, 780-940-6569
Saskatoon, Saskatchewan
Contact: Gordon Walz at g.walz@sasktel.net
Edmonton, Alberta
Contact: Cheryl at mpnalberta@gmail.com or 780-940-6569
Hamilton, Ontario
(Including Toronto, S. Ontario, Western New York)
Contact: John, mpnontario@gmail.com or call John at 905-892-8238
Vancouver, BC
Contact: Lisa at mpdvancouver@gmail.com
France
A support group is forming. Visit www.mpd.tel for more details.
Germany
Contact: kontakt@mpn-netzwerk.de
Japan
Contact: Kaori Taki at patchleojp@yahoo.co.jp
The Netherlands
Contact: MPD Stichting at info@mpd-stichting.nl or 088-0074-300
Spain
Contact: Peter at MPDSpainPacientes@gmail.com
United Kingdom
Upcoming meetings and forum found here
London
Contact: info@mpdvoice.org.uk
Scotland
Contact: info@mpdvoice.org.uk
MPD Chat is a Gmail group where cyber-friends connected by MPDs, can share troubles, swap information and share their stories. Posts are generally relevant to MPDs but connected issues such as fatigue, pain relief and depression often arise, along with a bit of general chat. We aim to have a happy group where people feel welcome and respected. On our main web site are MPD links, personal experiences of diagnosis and treatment, and a constantly updated database of articles on polycythemia vera, essential thrombocythemia, myelofibrosis and other relevant issues. Posts can be delivered to your inbox as they are sent, in a daily digest or you can read all the discussion on the site.
Includes an online support group (MPN-Net), answers to frequently asked MPN questions, myeloproliferative disorder biographies and offers medical resources for polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia (Idiopathic Myelofibrosis), and on chronic myelogenous leukemia (CML).
Facebook Myelofibrosis Support
This is a Facebook based group for Myelofibrosis patients.
Myeloproliferative Disease Support and Free Daily Email Digest
Since 1994, the MPDSUPPORT web site and free support email list has offered interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis. Anyone – patient, family member, or health professional, is welcome to join the growing list of subscribers. The archives are available for you to research information. You can subscribe to the daily digest list by either one of our two easy methods, the EZ web interface, or by email.
Close to 2,000 subscribers from 41+ countries. No censorship. Patient to patient, the list is not affiliated nor controlled by any pharmaceutical company, medical institution, nor any physician or group of physicians.