MPN Advocacy & Education International advocates on behalf of those affected by myelofibrosis (MF), polycythemia vera (PV) and essential thrombocythemia (ET). As a rare disease, the needs of those with myeloproliferative neoplasms (MPNs) often go unrecognized. Our advocacy efforts extend beyond responding to the unmet needs of the MPN Community. We identify concerns in a meaningful and productive way and create initiatives that impact quality care, treatment access, new drug development and represent MPN patients and organizations who are unable to address the issues surrounding a blood cancer diagnosis.
Working on Behalf of Vietnam Veterans
MPN Advocacy and Education International is actively working on behalf of Vietnam Veterans who were exposed to Agent Orange/Dioxin and now have essential thrombocythemia (ET), polycythemia vera (PV) or myelofibrosis (MF). Our goal is to add myeloproliferative neoplasms (MPN's), to the VA's ‘presumptive’ list of conditions resulting from exposure to Agent Orange to ensure benefits and compensation are appropriated. Funding for a study has been secured and will be done at Memorial Sloan Kettering in New York City. MPN Advocacy & Education International is in the process of compiling data from veterans diagnosed with an MPN. Please take a moment to take this important survey. (See link below)