About Us

Patients with a myeloproliferative neoplasm (MPN), including myelofibrosis, polycythemia vera, or essential thrombocythemia, face many challenges.  Patients and caregivers need:

  • Access to MPN education
  • Specific information about their diagnosis,
  • Quality and knowledgeable medical personnel,
  • Access to affordable treatment options and
  • Access to empathetic health care teams who understand psychosocial challenges patients, caregivers, and family members face.

MPN Advocacy and Education International is dedicated to providing the knowledge, support, and resources patients will need as they adjust to living with an MPN through educational symposia in several cities each year, website access, free webcasts of each program, collateral materials, and direction to people, resources and other organizations that can help.

We visit cancer centers and hematology groups and associations to grow awareness and engage physicians in smaller communities who may only see  one or two MPN patients, and who may not have the information available to them that  their colleagues in larger cities and academic institutions can access. MPN patients who may never see a website or MPN specialist have limited knowledge about treatment options, clinical trials, and the available programs and resources.  MPN A&EI is dedicated to finding all portals to reach the entire MPN community to grow awareness, understanding, and a better quality of life while living with an MPN.