MPN Patient Organizations Around the World
Australia
MPN Alliance Australia
MPN Advocate: mpnaa@mpnallianceaustralia.org.au
AZERBAIJAN
Fighting Leukemia Public Union
Contact: Baghirova Mehriban: mehriban63@mail.ru
BELGIUM
Contact: Ilse Jans info@mpnbelgium.org
Association ALTE-SMP (French)
Contact: Philip Ciesla cieslaphilip@hotmail.com
BRAZIL
Abrale – Brazilian Lymphoma & Leukemia Society
Contact: Fernanda de Carvalho Geiger Fernanda@abrale.org.br
CANADA
Canadian MPN Network
Contact: Cheryl Petruk canadianmpnnetwork@gmail.com
British Columbia
Vancouver
Contact: Mark Williams ,mark.mpn.vancouver@gmail.com
Alberta
Edmonton
Contact: Cheryl and Eugene Petruk canadianmpnnetwork@gmail.com
Saskatchewan
No current group established
Contact Alberta group
Manitoba
No current group established
Contact Alberta or Ontario group
Ontario
Hamilton
Contact: John Clark, jwclark@gmail.com
Toronto
Contact: Kevin Brown, kb@iconhomes.com
Kitchener/Waterloo
Contact: Joanne McKinney, JMcki99425@aol.com
Windsor
Contact: Jane Fleming, Janefleming62@gmail.com
Ottawa
Contact: Phil Arner, phil.arner@rogers.com
Quebec
Contact: Cheryl Petruk, canadianmpnnetwork@gmail.com
Newfoundland and Atlantic Provinces
Contact: Simon Lono, simonlono@gmail.com
CHILE
The Max Foundation
MPN Support Program: Day by Day
Contact: Lyat Granati Espinosa, Lyat.granati@themaxfoundation.org
DENMARK
Danish MPN Patient Organization
Facebook page:
Contact: John Jensen: johnilsoejensen@webspeed.dk
Finland
Association of Cancer Patients in Finland
Contact:Minna Anttonen, Minna.anttonen@syopapotilaat.fi
France
Association ALTE-SMP
Germany
MPN-Netzwerk, eV
Contact: Rainer Kuhlmann, r.kuhlmann@mpn-netzwerk.de
Contact: Werner Zinkand, w.zinkand@mpn-netzwerk.de
Hungary
MOHA – Foundation for Hungarian Oncohaematological Patients
Contact: Ibolya Kéri , moha@onkohemat.hu
Israel
The Flute of Light
Contact: Erez Rasilevski, Erez.rasi@gmail.com
MPN Advocates Network
Contact: Robert Zelig, fridarobi@gmail.com
Italy
Gruppo AIL Pazienti MMP Ph- (AIL MPN Patient Group)
Contact: Massimiliano Donato, ailpazienti@ail.it
AIPAMM – Ares Roma
Contact: Peter Lercher, peterlercher@aipamm-aresroma.it
Japan
MPN-Japan
Contact: Kaori Taki, mpn_japan@yahoo.co.jp
view Japanese MPN Booklet
Republic of Korea
Korea Blood Cancer Association
Contact: 김민정 Min Jeong Kim hopecenter@hanmail.net
Macedonia
BORKA – For Each New Day
Contact: Mirjana Babamova, Mirjana.babamova@borka.org.mk
The Netherlands
MPN Foundation
Contacts: Marianne Meijer-vanDijk and Paul Meijer, paul@mpn-stichting.nl
Norway
Landsverk Norwegian Blood Cancer
Contact: Inger Margrethe, Inger.Landsverk@mimer.no
Portugal
APCL Associação Portuguesa Contra a Leucemia
Contact: Lara Cunha, laracunha@apcl.pt
Serbia
UMF Association
Association for help to patients with Myelofibrosis
Contacts:Sanja Kotur and Jelena Lamovec, udruzenjemijelofibroze@yahoo.com
Slovakia
Association of Patients with Haematological Malignancies
http://www.hematologickypacient.sk
This is a citizen’s association to actively represent and promote interests of patients with haematological cancer-related diseases in exercising their right to health care leading to the prolongation of life and improvement of its quality. Provides free legal advice, patient education and support.
Contact: Katarína Fedorová, Katarina1.federova@gmail.com
Slovenia
Slovenian Lymphoma and Leukemia Patient Association, L&L
www.limfom-levkemija.org www.majboljsanovica.si
Contact: Kristina Modic, Modic.kristina@gmail.com
Spain
AEAL – Association for Lymphoma, Myeloma, and Leukemia patients.
http://www.aeal.es/sindromes-mieloproliferativos-espana/
Contact: Paloma Hernández, secretaria@aeal.es
Sweden
Blodcancerförbundet
Contact: Lise-lott Eriksson Lise-lott@blodcancerforbundet.se
Switzerland
MPN Patient Support Association Switzerland
Contact: Peter Löffelhardt, pelo.globe@gmail.com
United Kingdom
MPN Voice
Contact: Jon Mathias, Chairman, Jon.mathias@iname.com