Caregiver Resources

MPN Caregiver Resources

Tips for Being an Effective Caregiver
Support Groups by State
Susan: An Interview with a Caregiver


Additional Resources

Caregiver Action Network
Family Caregiver Alliance


MPN Caregiver Resources


MPN Advocacy & Education International understands the vital role a caregiver plays in the wellbeing of a patient affected by a myeloproliferative neoplasm. We can help provide you with information, resources and support as you navigate the many layers of responsibilities associated with myelofibrosis (MF), essential thrombocythemia (ET) and polycythemia vera (PV). We host several educational programs each year that are meant to provide support and education to both patients and caregivers.  We offer Caregiver Breakout Sessions that allow caregivers to ask questions and discuss their concerns in a private and comfortable environment.  We help to connect you with professionals that can help and can connect you with support groups in your area. Please check our events page  to register for one of our upcoming programs and feel free to contact us with any questions.

"Caregiving has many layers. It requires endurance, listening skills, humility, open mindedness, flexibility, wisdom, empathy, managerial skills, problem solving skills, healthy choices, rest, outlets, support and in many ways, the needs similar to those we care for, except that we have to be willing to be the strength BEHIND the patient."  Stephen W., MPN Caregiver, click here to read his story