During 2015 and 2016, Arizona State University, in partnership with the Mayo Clinic and Udaya Entertainment, successfully conducted two 12-week, home-based, online-streamed yoga interventions in MPN patients. Through these studies, we demonstrated both the feasibility of online yoga in MPN patients as well as the ability for yoga to improve MPN patient symptom burden (e.g., fatigue, anxiety, depression, sleep quality, pain) and quality of life. The data generated from these studies led to the submission of a large effectiveness trial to the National Institutes of Health, National Cancer Institute, which is currently in review. The success of our online yoga studies combined with an interest in meditation amongst MPN patients has led to the expansion of our non-pharmacological research umbrella to include an examination of the effects of meditation on MPN patient symptom burden and quality of life. We are hoping you could share the below information. Note that we don’t mention meditation below as we would like all potential participants to try the intervention and we will determine their perceptions about it afterwards. Here is the information to share:
We are currently conducting a study that explores the practicality and the impact of different strategies (i.e., mobile app, education) to reduce fatigue, MPN-symptom burden and improve quality of life. We are seeking MPN cancer patients, ages 18 and up, to participate. Participants must be willing to be randomized to one of four different groups that includes a combination of materials/resources and/or two different smartphone-based applications to help manage fatigue and stress associated with MPN. Participants will be asked to complete questionnaires at three different time points and wear a Fitbit device throughout the study, which they will keep at the end of the study in gratitude for their participation. This study, much like our previous online health studies, will include a limited number of MPN patients (N=90). The results of this study will provide the data needed to submit a large effectiveness trial to the National Institutes of Health, National Cancer Institute. This research will be conducted through a partnership between Mayo Clinic and Arizona State University (ASU) and may help advance our understanding on the potential role of non-pharmacological complementary approaches to symptom management in MPN patients.
If you are interested in learning more about or joining this study, please contact us by phone (602-827-2314), email firstname.lastname@example.org or visit this link to complete eligibility survey: http://bit.ly/mpnpilotapp (case sensitive)